tag:blogger.com,1999:blog-2730331862351722275.post5350633793539475368..comments2020-02-08T01:01:25.636-05:00Comments on 12 December 2008: Symptom Log: Day 19Lorihttp://www.blogger.com/profile/14154205811855856931noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2730331862351722275.post-91254108969002843142009-05-05T04:20:00.000-04:002009-05-05T04:20:00.000-04:00Thanks for sharing this blog post.
I help manage...Thanks for sharing this blog post. <br /><br />I help manage an online support community for people affected with Ataxia. If you have come across this site in search of support and kind words from others like you, stop by and say hello: <A HREF="http://www.livingwithataxia.org" REL="nofollow">http://www.livingwithataxia.org</A>Sarah Annhttp://www.livingwithataxia.orgnoreply@blogger.comtag:blogger.com,1999:blog-2730331862351722275.post-60789453349034392772009-05-02T19:07:00.000-04:002009-05-02T19:07:00.000-04:00I went through almost that exact same thing. I wa...I went through almost that exact same thing. I was diagnosed in 2001 (I was 26) and I was obsessed with lifting weights and walking for miles and miles trying to beat the MS. The thing is it is neurological so building muscle mass and endurance doesn't fix the symptoms.<br />I have learned to back way off when I notice any drift, increased numbness/tingling in my hands or increased asymmetry in my face. I don't push it in heat since that will wipe me out for a couple of days and I don't go more than 2 or 3 days in a row without lying down for an hour or two in the afternoon (which I understand might not be possible for you when you go back to work.)<br />I run my own petsitting/dogwalking business and am fortunate in having some financial assistance from my family but for me the key things were limiting stress and just trying to keep everything stable.<br />I do still get frustrated sometimes when I can't do something I would like to do because I know it will cause my MS problems afterwards and especially frustrated when people demand I do things that I know will cause a total flare-up.<br />Get PLENTY of rest, eat healthy-ish, avoid stress and stay out of the heat. It has worked for me for 8 years and I've never taken any of the MS drugs and haven't been back to a neurologist in 6 years since all they want me to do is take one of the drugs.<br />That is all I am saying when I say to stop fighting it :-)barriehttp://funwithdogs.tumblr.comnoreply@blogger.com