Thursday, May 3, 2012

The Spoon Theory

The Spoon Theory written by Christine Miserandino

I've read this a couple of times since my friend Erin brought it to my attention in the first year after my diagnosis.

These days, I'm pretty fortunate. I've got a lot of spoons. They aren't limitless or as numerous as I had in my youth but I've got a lot to work with. Getting ready in the morning, for example, used to take individual spoons for hair did, makeup did, clothes on when now it's just one spoon for the whole "getting dressed and presentable".

 I still have to calculate for weather, temperature, and time of day. I can usually have a full and complete day - the kind of day where everyone forgets that I am sick - if I account for those three things. Sometimes - not very often and for not very long - I even forget that I am sick. Then something will happen and I will be forced to remember. My left knee will wobble, or I will spontaneously just start to tip over, or I'll be hit with a rush of fatigue that makes me need to sit down right that second. That's just what I live with. My spoons are limited.

Today is a difficult day. I'm looking for a job, and the ideal employer for me "decided to move ahead with another candidate". I was willing to give this company 80 to 90% of my spoons if I needed to just to work for them, but they don't want them. I'm not good enough, and they are probably better off with someone who's got the degree they want and unlimited spoons.

I have no other prospects and a crazy amount of time on my hands. This situation leads to crying at home whilst Ellen gives a school in Las Vegas, Nevada a new library. But in a couple of hours I will put on my game face and head out to a gallery opening for a couple of artists. That probably won't make me feel better, but at least I will be dressed and presentable.

 Maybe there will be wine.

Wednesday, May 2, 2012

$2,511.27

That's our total as of right this minute. Together with Erin, Margaret, Rina, Viktoria and Joe we raised over TWO THOUSAND - FIVE HUNDRED DOLLARS for MS research and patient resources. I am humbled by your support in this endeavour.

It didn't rain. We looked fabulous. We walked the 3K route, but I had to take two breaks because I overheated on the back stretch, which was disappointing.

I want to thank each and every one of you who helped us get exceed our team and personal goals. We could not have done this without you, and we ended up finishing 11th overall in team fundraising.

I have already registered for next year's walk, and we will have a new goal. I hope you'll be there for us again next year.
THANK YOU ALL!

Monday, April 23, 2012

MS Walk 2012 Fundraising Update

Hello my people,

Long time no talk. I'm working on some stuff that will hopefully make my entries less far apart.

That said, my MS Walk team has had a name, uh, alteration.

This is my personal fundraising page. You will see that I've passed my goal, Team Gl*tterBs has passed its goal and now we're shooting for EIGHTH place at the Vancouver location of the walk next weekend.

Check it out! The overall standings are on the right hand side!

If you can help us get there, I will send this week's top donor an Official Team Gl*tterBs Purple Tiara!

Thanks people, and I'll be back to update you soon.

Smooches, poodles.

4:30 PM Update because my Gl*tterBs are AWESOME, we're now in eighth place and shooting for seventh! The offer still stands on the top donor of the week tho!

Saturday, February 18, 2012

TEAM GL*TTERB*TCHES - 2012

TEAM GL*TTERB*TCHES - 2012 needs YOUR HELP.

Also if you are interested in being one of the 100 people who is interested in paying $25 for a margarita or sangria and three tacos to support TEAM GL*TTERB*TCHES, please drop me a line or send me a message. I want to do this in 4 to 6 weeks.

Friday, January 20, 2012

How About the Province of British Columbia Lets Its Business Owners Act Like Grownups?

Change BC Liquor Laws preventing Alcohol service at Film Screenings Petition | GoPetition

I support changes to be made to the BC Liquor Control and Licensing Act that prevent Single Screen Movie Theatres from obtaining a liquor license as well as regulations that prevent licensed cultural venues from selling alcohol during film screenings whose primary audience are adults of legal drinking age.