Friday, September 4, 2009

Oh blah.

Everyone I know with MS who works are either self-employed or have the same jobs they did when they got diagnosed.

Has anyone reading this looked for a job post-diagnosis? How do you do it? What do you look for in a job description and an employer?

I've really settled in to a pattern with my symptoms, but some days I need help, some days I need to spend the day in my pjs, and some days I'm really clumsy. I don't know how reliable I am. I don't know how long this relationship I have with my symptoms is going to last, and I don't think I will need accommodation often, but when I do, I really do.

I have NO idea what kind of work I am even capable of doing, because I've never done this before.

I need a job before I go batshit nuts. I can't live broke like this anymore either. It's just kicking me in the face every day.

I met with the job counsellor again today where we went through my job preparedness and readiness. I passed that test too. Passed it to the point that they aren't sure that they can help me.

I just have this sneaking suspicion that in this job climate, when given the choice between me and someone with no problems, they'll pick no problems over me, or if they're interested in diversifying their workplace they will pick someone who is more obviously and/or consistently disabled.

This sucks & I suck.

Speaking of sucking:

8 of my friends think I'm pretty awesome, and 1 thinks I'm an asshole. I consider that a sign that I've chosen good friends.

If you haven't shared your opinion, go ahead and try it now.

I am most popularly known as courageous, enthusiastic, realistic & self-directed. 3 to 1 my friends think I'm sane. That makes me wonder if any of my friends have met me.

I DO need more and shinier tiaras.

1 comment:

  1. I am with you on this wholeheartedly. I lost my job, and now, after the MS, the diagnosis, the symptoms, all that crap - I just find it to be near impossible to find work. I don't even know what to look for anymore. Meanwhile my bank account dwindles as I keep up with my medical insurance and the appointments and the Avonex and all that. It just seems to be a pretty daunting situation.

    Wouldn't it be nice if there was just some community for all of us to be in, work in, etc. Is that communist? Commie MS'ers! Well, whatever, at least then I'd be able to get a job!

    If you figure out the answer, or maybe if you start a business and need a good worker, give me a holler!