Tuesday, March 12, 2013

A group of people with MS walk into a bar...

I've belonged to two MS groups on Facebook (I remain a member in only one), and probably a half a dozen other sites or forums at one point or another. On Facebook I've had some problems with being friended by women who think it's great that we both have MS and then being defriended shortly after they see the stuff I post to my wall. I post a lot of stuff about marriage equality, trans* equality, anti-bullying, anti-racism, atheist organizations, feminism, intersectionality, and rape culture. I also swear a FUCK of a lot.

This is apparently a problem.

It probably doesn't help that almost NEVER a happy person. I choose not to waste my energy seeking an ideal I've only been able to obtain in 10 to 30 second increments. I get the orgasm, I drink the cocktail, and/or I find the perfect thing, it's perfect for a moment, then it's done, and so is being happy for that day. I am content most days, but this constant drive to "Happy" is just one of those insane perfectionist, crazy making, unachievable ideals.

Fuck that shit.

That worldview don't go over so well with the chronically ill. I have yet to see the benefits of trying to be fucking happy when it comes to curing any of my MS symptoms. I try to remain positive around my friends and loved ones, if only to make sure that I am not alienating myself from them.

But the biggest thing I've learned in the past three years is that sometimes the only thing I've got in common with a person who has MS is the fact we both have MS. That's not enough to build a friendship around. At least for me.

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