Saturday, November 10, 2012

Because they care?

The MS Society of Canada’s mission is to ‘be a leader in finding a cure for MS and enabling those affected by MS to enhance their quality of life.’
We want to hear from you! This fall, the MS Society of Canada is launching The Listening to People affected by MS initiative. The nation-wide survey will be available on November 22, 2012.
More information on the MSSC's patient survey can be found here.

What is the Listening to People affected by MS initiative?
This initiative is a multi-pronged evaluation which has the single purpose of hearing from Canadians affected by MS about their quality of life priorities, needs, and barriers so that the MS Society of Canada can better inform decisions that relate to our programs, services and advocacy.
I'm interested in taking part in this if only to point out that more work and advocacy needs to be done around employment and NOT HAVING HEALTHCARE TEAM MEMBERS DISCOURAGE WELL PEOPLE FROM WORKING.

(I'm screaming on the inside.)

This survey is only open to Canadians, but when I answer it I will note the questions and post them up here for my US, UK and Australian readers (I have Google Analytics) to consider, or answer in the comments, or answer and send to your local MS agency.

I suspect that nothing will change if what we collectively end up wanting is too expensive, but hey... if you don't ask you'll never receive.

Am I the only one who wants to head out to Great Canadian Superstore to see if they can land a box of those President's Choice Cheesecake Lollipops *right now*?


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